I Have Something to Say: AAC use in Angelman Syndrome
Augmentative Alternative Communication (AAC) systems allow the user access to a full language. In other countries, AAC use for individuals with Angelman Syndrome (AS) (who have no speech) has been very successful, but in the UK, such systems are rarely offered. ASSERT wants to change this and make AAC use the norm for individuals with AS.
- Provision of AAC systems. Families caring for an AS individual often have limited resources. AAC systems are costly and full support for AAC use requires multiple copies per user. ASSERT will provide up to 50 families with an AAC system.
- Provision of training. There is little UK expertise in using AAC systems with AS individuals. ASSERT will provide training days to teach parents/carers/therapists/teachers how to effectively use the systems at home and school/care placement settings.
- Increase the use of AAC for AS individuals. ASSERT will follow up families to monitor and record progress with AAC systems. Results will be fed back to therapists to encourage wider use in schools and motivate other families to use AAC.
How we will achieve our goals
Funding is required for the initial purchase of up to 25 copies each of either PODD communication books or the ProLoQuo2Go app for iOS (the two most commonly used AAC systems for AS individuals); to cover the costs of venue hire for training days; for expenses for trainers; printing costs of monitoring reports.
Where the money will go
Simplistic communication methods currently taught in the UK severely limit the quality of life for individuals with AS, their families and carers. Promoting AAC use and expertise will hugely improve life quality for the individuals who receive the systems, broaden the use of AAC in the AS community and ultimately all non-verbal individuals.