This project was awarded £25000 by the OneFamily Foundation. View all winners

I Have Something to Say: AAC use in Angelman Syndrome

(Warwickshire)

Augmentative Alternative Communication (AAC) systems allow the user access to a full language. In other countries, AAC use for individuals with Angelman Syndrome (AS) (who have no speech) has been very successful, but in the UK, such systems are rarely offered. ASSERT wants to change this and make AAC use the norm for individuals with AS.

Our goals:

  • Provision of AAC systems. Families caring for an AS individual often have limited resources. AAC systems are costly and full support for AAC use requires multiple copies per user. ASSERT will provide up to 50 families with an AAC system.
  • Provision of training. There is little UK expertise in using AAC systems with AS individuals. ASSERT will provide training days to teach parents/carers/therapists/teachers how to effectively use the systems at home and school/care placement settings.
  • Increase the use of AAC for AS individuals. ASSERT will follow up families to monitor and record progress with AAC systems. Results will be fed back to therapists to encourage wider use in schools and motivate other families to use AAC.
£25k project Currently ranked in

How we will achieve our goals

Funding is required for the initial purchase of up to 25 copies each of either PODD communication books or the ProLoQuo2Go app for iOS (the two most commonly used AAC systems for AS individuals); to cover the costs of venue hire for training days; for expenses for trainers; printing costs of monitoring reports.

Where the money will go

Simplistic communication methods currently taught in the UK severely limit the quality of life for individuals with AS, their families and carers. Promoting AAC use and expertise will hugely improve life quality for the individuals who receive the systems, broaden the use of AAC in the AS community and ultimately all non-verbal individuals.

Comments (9)

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  1. Posted on August 9, 2017

    ??

  2. Posted on August 13, 2017

    Is there a way I can publicise this through Facebook?

  3. Posted on August 15, 2017

    Yes please do! You can copy the link from the top of this project page and paste it into your FaceBook feed with a comment, or you can go to ASSERT’s FaceBook page listed above and share my posts from there. I’ll be updating the Facebook page regularly, so just search on there for my name. Or you can send me a Messenger message through FaceBook and I will send the link to you.

    Thank you.

  4. Posted on August 27, 2017

    Hope this helps support all families with members who have Angelman’s Syndrome. Lots of love

  5. Posted on August 30, 2017

    Please vote, our children need a voice x

  6. Posted on August 30, 2017

    Thank you!

  7. Posted on August 31, 2017

    Hi

    I hope this vote will help support all the families with members who have Angelman’s Syndrome

    With best regards

  8. Posted on September 4, 2017

    I urge everyone to vote to support the families caring for AS individuals x

  9. Posted on September 5, 2017

    Please vote for these children as they need our voice

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