Motor Neurone Disease Association
Today in the UK, six people will sit in a hospital clinic and hear the devastating news that they have motor neurone disease (MND).
MND attacks the nerves, leaving those affected unable to walk, talk, eat and ultimately breathe. There is currently no effective treatment or cure. Over half will die within two years of diagnosis.
At a time of great emotional stress, family finances come under tremendous strain. All families will lose one income, many will lose two due to the care needs of living with MND. Significant additional costs (such as equipment, home adaptations, respite care and increased energy bills) mean families use up savings and pensions, impacting their financial future.
Everyone with MND is entitled to claim at least one welfare benefit, but the process is often long and complex. When families are coping with devastating and rapid changes to their life, health and future plans, they need support to navigate a system which is ill designed for people who can’t attend meetings, speak clearly or even hold a pen.
With your vote, our project will provide specialist support by phone and email, guiding families through the benefits process, alleviating stress and anxiety about money and allowing them to focus on precious family time.
Who are we
The MND Association was founded in 1979 by volunteers with experience of living with or caring for someone with MND. Since then, we have expanded with an ever-increasing community of volunteers, supporters and staff, sharing the same goal – to support people with MND and everyone who cares for them, both now and in the future.
Our vision is “A world free from MND”.
Until that time we:
- improve care and support for everyone affected by MND
- campaign so the needs of people affected by MND are recognised
- fund and promote research leading to new understanding, treatments and ultimately a cure.
People with MND, their families and carers are at the Heart of everything we do.
We Collaborate and value everyone’s contribution, we achieve excellence through personal Commitment, we Respect and respond to people’s diverse needs, backgrounds and views and we ensure Openness in all of our relationships.